I started on high doses of cyclsporin and my red blood cells are living longer.
Now it has been 2 weeks since I received RBC’s and expect my counts to last to the end of the week. I still need platelets every 2 days. But I keep my eyes on those numbers, too.
They performed a repeat bone marrow biopsy Mon. Hopefully there is a clearer picture of what’s happening. One of the drugs I was on, fuzzied my results before. I wasn’t in pain till after when I felt like they dropped me on my hip, which they did not!
The drug is really strong, makes me feel cold and I rest a little more. I’m keeping the highest dose now, til something stabilizes in a year or so .
So back to waiting for 10 days for results. I am more optimistic than the director is, but is some reason I get to experience all thia
You’re in our prayers every day Sandy. Love you!
Oh Sandy … this strange week… just missed to answer…. lovely that things are better… but this chill I wish to meet with warm and loving hugs. What you´re telling about medicine and so on I don´t really follow and understand. Just keep you in my heart where it´s warm and nice.
Spoke to mamma and pappa and they asked me to tell you´re in their praires as well.
All the best to you, a lovely and fantastic person.
Eva
So glad to hear your red blood cells are living longer. Wrap up in a nice warm blanket and rest. It sounds like this is a case of being patient. In five years you’ll look back and be amazed at what you ecperienced. You are being remembered in our daily prayers.
Hi Sandy … sounds like things may be looking up for you. I am so glad. You are in my prayers daily and I will miss seeing you on your occassional visit to Roberts. (I quit the end of October.) Keep your positive outlook and remember you are in a lot of peoples thoughts and prayers.