Well, we were hoping my own bone marrow would recover and produce the cells I need to sustain life. So, we decreased the anti-rejection drug cyclosporin and watched. My blood cells plummeted and I am receiving RBC’s every 5 days instead of every 4-6 weeks and platelets every 2 days after not needing them for 4 months.
Didn’t work! We have increased the cyclosporin to a therapeutic level and will wait and see. I didn’t need platelets this morning and they think I’ll last till Monday. They’ll be really low on Monday, but they have a unit ready for me.
We are praying this direction will return me to a life sustainable cell count so we can let the donor bone marrow start producing the cells. My bone marrow isn’t able to do the job.
What a roller coaster ride. It’s only been 5 1/2 months since the transplant and we need to be patient. It could take another year, easy.