Looks like this will be a wait and see event. The director of the facility here was at a conference in Seattle, WA at Fred Hutchins hospital and used me as a unique case. They all agreed that another transplant is not recommended. I am disease free so far and that is good.
So, we will support me as necessary until my bone marrow replenishes itself. That could take months up to a year or so. I receive transfusions every 5-6 weeks, not bad actually. If I were in bad shape I’d receive them every week. I haven’t needed platelet transfusions for 4 months. My platelets are dropping slowly, but the doctors say not to worry. They will go up and down in the process. The only unknown are my white blood cells and I am receiving Neupogen to stimulate them and remind my bone marrow to get in gear and produce them on their own.
So, it’s not for me to sit around and worry. I still get tired, but am up and around and out a lot more. Our cruising and traveling days are limited for the time being. Peter is chomping at the bit to travel and has our next trips planned as soon as I get the word I can fly!
Life is for living and that’s what I’ll do.